Friday, May 9, 2014

How It Went

We made it. And we've (mostly) recovered.

I must admit, it was the best sleep study we've had so far. Collin is overall just a better sleeper, which helps tremendously. Also, we had some very good nurses and a better plan this time. Plus the fact that Cincinnati Children's is just a wonderful facility and things tend to go about as smoothly as possible there.

Part way through the gearing-up process,
hanging with his special friend, Mr. Bear.
(Thanks Aunt Carol! See you soon!)
BUT. The sleep study is just not a well-designed system, and that's all there is to it. It doesn't create a natural sleep environment and necessitates multiple sleep disturbances throughout the night. For a test intended to assess the quality of sleep, that seems a little counterintuitive to me.

We turned the lights out around 9:00 pm and it wasn't long before I was out of bed half a dozen times because of a nurse or sleep tech entering the room. With a flashlight. I stopped keeping track pretty quickly because it was just making me grumpy(er), but there had to be nearly 20 similar instances over the course of the night. Somewhere around 2:00 am, I started to wonder whether it would ever really be over.

It's not necessarily the fault of the nurses or techs. They have to make sure all of the equipment is functioning properly so the study is as accurate and helpful as possible. And pseudo-gluing dozens of sensors to a squirmy, head-rubbing 5-year old is a lesson in entropy.

Collin's bank of monitors. You can't tell
from this how luminously they glowed in
his face.
But 6:00 am did come. The tech couldn't tell us anything about what he did with Collin's BiPAP settings overnight, except that he never had to use oxygen. A sleep study is a very long and complex study to read, so the report won't be ready for a couple of weeks.

Four days later, Collin still has adhesive collecting lint in various places on his body and we're all still a little off in our sleep routines. But we're glad to have the test behind us, looking forward to hopefully learning something helpful from the report, and thankful to have access to quality healthcare for our boy.

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