Thursday, December 13, 2012
We said goodbye to our friend Maddie last week.
For a variety of reasons, her brain was no longer telling her body to breathe and her parents, advised by her care team, made the impossible decision to let her go. They made her comfortable and surrounded her with love till the end.
Maddie was deaf and blind. She had low tone and fought seizures. But what characterized her more accurately was that she had a beautiful, fiery spirit - just like her mom, Debbie, who was one of the first people to reach out to me when we started finding out about Collin's challenges. I remember Debbie telling me a story about how a thoughtless comment had made her want to punch someone in the face. Somehow, I got so much hope from her sharing that raw emotion; likewise, watching her family live a full, happy life helped me to see that our future could be just as bright.
We are so sad that Maddie is gone, happy that her suffering is over, aching for her family, and incredibly thankful for her very real impact on our lives. It's an awesome and complicated mix, just like her.