Monday, February 21, 2011

The 2nd Birthday Extravaganza: Part 3

Our final weekend of birthday festivities started with a trip to the Farm. While there, we tried out Collin's awesome new Boba carrier that we recently picked out at Mama's Hip. After a few unsuccessful attempts to get a carrier company to cooperate with me on a modified carrier for Collin (I won't mention names here, however sorely I am tempted), I contacted Shannon, the owner of Mama's Hip, and she was very gracious and excited to help us. She picked the Boba (she had other options, but the Boba was so perfect, we never got to them), which comes up a little higher in the back to provide Collin with extra trunk and head support. It has foot stirrups on the waistband to give leg support when he needs it (he likes to kick for a while, but then they end up just hanging there), and (my favorite) a hood to give him extra head support - especially for when he's on our back and we can't reach him. The hood is just wide enough to support his head but not obstruct his vision. He LOVES it. He is either passed out asleep or kicking and talking when he's in it. Saturday, we hiked him up and down the farm and he completely wore himself out with sheer excitement. I was pretty worn out with excitement, myself. The Boba is designed as a carrier for older babies and toddlers and I love that it is so well designed that we can use it right off the shelf for Collin. It carries up to 45 pounds, so we'll be able to use it for a long time in all of the areas where we can't or choose not to use a stroller.

Collin's THIRD birthday party included fun and loving family, the traditional peanut butter chocolate chip birthday cake, and lots of presents that made fart and burp noises. Fancy that.

The FOURTH and FINAL birthday party was at Grandpa and Susan's house. We had a delicious steak dinner with chocolate-cherry birthday cake! Collin got some swank clothes and a book with a mirror on the front that he already loves.

And so, birthday season 2011 comes to a close. Collin made out like a bandit and had all kinds of fun and we're looking forward to all of the new things we'll be celebrating this time next year.

Thursday, February 17, 2011

Keto Kid

Yesterday marked the one year anniversary of Collin starting the ketogenic diet. This is a picture from his hospital admission for initiation of the diet. He had finally passed out after almost a hundred seizures and lots and lots of medicine. I remember it as the first time I had taken a deep breath in days.

We are now going on 8 months of seizure control. He has not been on anti-epileptic drugs of any kind for 7 months. I do not take that for granted.

Collin had an EEG Monday to get a look at whether the ketogenic diet has affected his brain activity even though we're not seeing obvious seizures anymore. When I saw Dr. Awesome this morning, he described the epileptic activity on the EEG as "negligible" -- a "99% improvement." Aside from mild slowing in the background and very rare small epileptic discharges, Collin's EEG has normalized. At four months old, Collin's EEG was so chaotic and startling that the technician didn't believe the leads were really connected at first and once she realized what was going on she called the emergency room.

So, when I have mornings like this one, when nurses at the pediatrician's office ask totally clueless and insensitive questions about Collin's development, it honestly doesn't bother me...very much. I know how far that little brain has come and it makes me too thankful and hopeful to get very worked up about where his circles fall on a little development chart.

Wednesday, February 16, 2011

The 2nd Birthday Extravaganza: Part 2

This is actually a special birthday edition of MOOM. Aside from having a fantastic, laid-back birthday yesterday that included a trip to the toy store, an awesome nap, dinner at Qdoba, and a birthday party at Aunt Tess and Uncle Kevin's house, Collin also went to the park for the first time. As in, played on the playground. As in, swung by himself in a swing. He loved it, but, much like our first trip to the grocery store with Collin in the cart back in November, it was pure magic for me. So much so that I am including every single picture I took, including the one in which I'm making a stupid face. And if swinging by himself wasn't enough, his daddy convinced me that Collin would really love going down a little slide. First with help. Then by himself. And then part of the big slide. And then the whole big slide, including bumps. The last slide picture is of Collin coming down the curvy slide. I was like, "Wait - whose birthday is this, anyway?"

Tuesday, February 15, 2011

Monday, February 14, 2011

Recipe for a Great Valentine's Day

1. Get up at the booty crack of dawn so you can get sleep deprived for an EEG. OK, maybe I'm being sarcastic on this one. We don't have the report yet, but Collin cooperated like a champ.

2. Do some awesome Valentine projects. Collin played with these fun, sticky Valentines on his tray with his OT and I put the little ones on the window for him to look at. He wouldn't touch anything at first, but he was into it by the end.

3. Have an impromptu dance party with your parents. Because nothing says "Happy Valentine's Day" like bad dance moves.

Sunday, February 13, 2011

The 2nd Birthday Extravaganza: Part 1

Collin's 2nd birthday started off with a bang when his present from Nana and Grandad was delivered Saturday afternoon. This sweet recliner was inspired by our friend Emily and Collin sat right up in it like such a big boy. I foresee lots of comfy hours spent in that chair.

Next up was Collin's first birthday party. DeeDee threw quite the birthday bash, complete with shiny balloons, Italian food made by Mimi, presents, fun and crazy family, and an ice cream cake with a blue car on top!

Collin cleaned up in the present department at his party. He got a cool blue swing for the back yard and all kinds of cash...for buying things for his parents, of course.

Monday, February 7, 2011

Snorty McSnorter

Snorty McSnorter from Annie Kratzsch on Vimeo.

Tonight, Collin rediscovered a strand of light-up ghosts his DeeDee bought him for Halloween. Hilarity ensued.