SOMEbody's been slacking on the blog.
I'm pointing at Collin.
We've had a surprisingly delightful week, despite the fact that Collin now has seven teeth coming in at once and likes to stay up late at night talking about it. But it did take a while to recover from this most recent stint of seizures and it's only in the past few days that I'm starting to feel like I'm crawling back out of my hole. Training for our 5K is going really well. I overcame my knee injury with some good shoes and some coaching from Collin's Aunt Tess and I think I will definitely be able to make it through without throwing up or dying. So, that's good.
Collin is also at the very end of his Keppra wean. I know it's not what a lot of people would have done, but we continued Collin's wean throughout his recent seizure episodes and we feel really good about that decision, because the seizures came under control with a slightly increased ratio and no more meds. We feel like we've seen a big difference in how vocal and interactive Collin is. It didn't take long after the seizures passed for his new laugh to come back. We had only been able to get laughs with the same old bulb-syringe-in-the-mouth trick, but last night I was rubbing his head after a long walk (on which he sang/talked/yelled from beginning to end) and this is what happened.
We're going to give Collin a while to get used to being off of Keppra before we start weaning the clonazepam and we're continuing to tweak his diet to make it more reliable and digestible. We're also keeping up the best we can with his NACD program and have seen great improvements with his eye control and rolling skills. He now does most of the work himself in our rolling exercises and has even started trying to move (albeit very slightly) when he's laying on his tummy. Collin has also spent a lot of time out in the beautiful spring weather, mostly barking orders at me and Kyle while we work in the yard.