We had a quiet, restful 2 days at home together this weekend. Collin was doing great - lots of open eye time, super happy. This morning, I was even practicing a little bit of bottle feeding with him. And then, out of nowhere, he launched into a seizure that scared the crap out of me. I don't know if it was because we're still not that far out from the hospital stay or if it was because things seemed so good, but it really shook me up.
The rest of the day since then has been a blur, just like all of the days when seizures come back: lots of calls to the neurologist, lots of time spent trying to keep Collin awake while we waited for medicine to work, lots of anxious hours watching to see if the seizures were gone, only to have one start just as we had started to relax. It is draining in so many ways and we had to regroup on several occasions to keep ourselves from spiraling downward.
I wish I could say that it's over now, but I'm actually taking my turn on seizure watch while Kyle gets a breath of fresh air and takes a shower (I just had my turn). We're down to our last option for home treatment and if it doesn't work, we'll be heading back to the hospital. I can't tell you how much I hope that doesn't happen. We need a break so badly.