It was a busy weekend for Collin. We increased his Topamax twice; though, as of Sunday morning, he was still having at least one decent cluster of seizures a day. This has pretty much put an end to the eye opening we were enjoying everyday and we haven't really seen any smiles or much interaction since late last week. He's also sleeping 20-22 hours a day.
Naturally, this is all tough and discouraging, but we did have a few encouraging experiences over the weekend. Saturday, we went to a picnic at VIPS, the provider of Collin's vision therapy. An overwhelming majority of the kids there had multiple issues just like Collin, and we were welcomed warmly. Nearly every single parent introduced themselves to us and shared openly about their own experiences. It's hard to explain the effect it has to be among a group of people who understand your daily struggles. Just being there made us feel 'normal' in a way and we left feeling encouraged and hopeful. VIPS also offers a weekly playgroup for visually impaired kids and their parents, so I'm hoping to work that into our schedule soon.
Then on Sunday, a group of our dear friends decided to fast for Collin throughout the day and then meet to pray for him in the evening. We joined them and, throughout our hour of prayer, were totally overwhelmed by their insights into our hardships and their tender compassion for Collin and our family. I wasn't prepared for their tears and snotted all over poor Collin the whole time. There's no way to describe what it feels like to be surrounded and embraced and lifted like that.
On a side note, Collin has started to go bald in a major way (pictures to come soon) and he shed all over the couch we were sitting on during prayer. It looked like I had been holding a little shedding dog in my lap instead of a fat little sweetie.