Monday, August 17, 2009

Weekend

It was a busy weekend for Collin. We increased his Topamax twice; though, as of Sunday morning, he was still having at least one decent cluster of seizures a day. This has pretty much put an end to the eye opening we were enjoying everyday and we haven't really seen any smiles or much interaction since late last week. He's also sleeping 20-22 hours a day.

Naturally, this is all tough and discouraging, but we did have a few encouraging experiences over the weekend. Saturday, we went to a picnic at VIPS, the provider of Collin's vision therapy. An overwhelming majority of the kids there had multiple issues just like Collin, and we were welcomed warmly. Nearly every single parent introduced themselves to us and shared openly about their own experiences. It's hard to explain the effect it has to be among a group of people who understand your daily struggles. Just being there made us feel 'normal' in a way and we left feeling encouraged and hopeful. VIPS also offers a weekly playgroup for visually impaired kids and their parents, so I'm hoping to work that into our schedule soon.

Then on Sunday, a group of our dear friends decided to fast for Collin throughout the day and then meet to pray for him in the evening. We joined them and, throughout our hour of prayer, were totally overwhelmed by their insights into our hardships and their tender compassion for Collin and our family. I wasn't prepared for their tears and snotted all over poor Collin the whole time. There's no way to describe what it feels like to be surrounded and embraced and lifted like that.

On a side note, Collin has started to go bald in a major way (pictures to come soon) and he shed all over the couch we were sitting on during prayer. It looked like I had been holding a little shedding dog in my lap instead of a fat little sweetie.

6 comments:

  1. Here's a big cheer for grabbing a little bit of 'normal' wherever you can find it :) And a good, prayerful cry can be very cathartic. We were definitely thinking of you on Saturday. Lots of love from the Williamses

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  2. Hooray for VIPS! I have heard that they are a wonderful organization. There is also simply no substitute for meeting other families who have been through -- and are going through -- similar experiences. I hope his meds can get stabilized so he can start to enjoy playgroup soon!

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  3. I am beyond happy that you found people who share your experience. I know how powerful it is to feel like you aren't alone.

    Also I figure poor little guy has strength to support the Kratzsch hair or the teeth. We can only ask so much of him. He's only six months old. ;)

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  4. It is exciting to hear that people around you are racheting up the love and support in such wonderful ways.

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  5. Melissa WeatherwaxAugust 18, 2009 at 8:11 PM

    Annie I think you are the most wonderful mother ever. I am amazed at everything you do. You are truly blessed to have such a beautiful baby, and he is blessed to have such wonderful parents. You are in our thoughts and prayers, but I really think I need to pray that I can have half of the strength that you have as a parent.

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  6. Hey Kyle and Annie,

    Just wanted to let you know Kristen and I have been thinking, talking and praying about you guys. Been following the updates on Sojourn message boards and just found your blog today. Thank you for posting these updates, it's a good reminder that my complaints about small daily problems are meaningless. Will keep praying for Collin's health and development. We also heard you volunteered to provide a meal for our friends The Stettlers. I thought that was so amazing when you guys obviously need support too! If there is anything we can ever do for you don't hesitate to ask. my email is rolson@wave3.com

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