This blog is so helpful in allowing me to process things as we face them and allowing all of you to keep up with Collin at your own convenience; but, I'm also hoping that it will be something we can share with Collin one day. It's a unique way to record not only his story, but your participation in it. So, every once in a while, just post a comment - even if it's just to tell us that you're reading. It is great for us so we know who is following us and one day Collin will be able to hear messages from all the wonderful people who were pulling for him this whole time. (I finally fixed the comment function so anyone can post - just write your comment, click 'Post', choose 'Name/URL', and type in your name.)
I spent a lot of time on the phone with the neurologist today. They don't think that the B6 caused the spasms, rather that we hadn't adjusted his Topamax to match his weight and the B6, by making him more alert, triggered them. Maybe so. We're going to get him stabilized on this higher dose, then reintroduce the B6 and see what happens; we got such good results in terms of opening his eyes and interacting that it would be worthwhile to have him on it if there aren't any adverse effects.
Collin stayed awake more than usual today, which means that we got to do more of our therapies than we have been recently - maybe that's why he stays asleep so much. This is a picture of him 'waking up' after what I'm fairly certain was a fake nap while I was trying to get him to practice rolling over.